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The mind is a powerful thing.

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It’s ugly, isn’t it?  And it’s been living in Sam’s room for awhile and I didn’t even know it was there.  One day while getting ready for bed, Sam went and retrieved this little thing and said, “Mom, can I pretend this is cancer?”  I was surprised by this question and curious at the same time as to what his intentions were.  He picked up the “cancer” and threw it with all of his strength against his bedroom wall.  Then he stomped on it, repeatedly.  Big brother Jack entered the room and quickly helped Sam think of other ideas to do to the “cancer.”  They took it and wedged it between the doorframe, smashing it repeatedly.  They took it and threw it over the railing down into the foyer.  They gave it to Champ and let him go a few rounds with it.  And because they are boys and just can’t help themselves, the even pretended to “toot” on the cancer.  (This was by far their favorite!)  By the end of this little exercise we were all laughing and trying to come up with even more ideas to destroy the cancer.  The more I thought about it, the more I realized that this thing did have many similarities to Sam’s cancer.  It was ugly-just like cancer.  It was living in a place for awhile and we didn’t even know it was there until Sam began vomiting consistently for ten days. And the more we destroyed it, the happier we became.

Sam has continued to struggle with nausea and vomiting during his journey, and has developed a few fears associated with it.  Getting sick is a daily reality for him and as you can imagine, wears on him mentally.  He is afraid to eat sometimes, fearing it will trigger his vomiting.  And because he vomits so frequently, doctors have put him on nightly fluids here and there to battle dehydration, which requires his port to be accessed (He is not a fan of having a needle taped to his chest).  Our little exercise with “cancer” had done wonders to lift his mood, why not try it again with some of his fears?  So, we had him write down what was bothering him the most.

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After he had written down his fears, it was time to destroy them.  First, he flushed one of them down the toilet.  It’s a boy thing.

ERP rounded corner templateNext, he destroyed one in the garbage disposal.

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And then finally, we torched one at the kitchen sink.

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We’ve even created a chart to record Sam’s successes!  He calls it his “Happy Talk Time Chart.”  One of the strategies that Dr. Thorne, one of the Riley oncology therapists, recommended was Self Talk.  Self Talk is the act of talking to yourself, encouraging yourself that everything is fine.  This technique can teach you how to control emotional and physical reactions by suggesting more effective ways of interpreting and thinking about your experiences.  She has also taught him deep breathing techniques as a form of relaxation when he begins to feel anxious about getting sick.  Instead of calling it Self Talk, Sam has renamed it “Happy Talk Time” because he says that when he talks to himself, encouraging himself not to get sick, he thinks about happy things.  Fine by me!

My teacher friends are cringing right now looking at my homemade chart-complete with hand drawn lines and lettering!

(I’m so sorry!  No Clip Art ladies!!!  Are you disappointed???  UGH!!!!!!)

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Sam did such a GREAT job the past two weeks talking himself out of getting sick, that we had to celebrate!  We called up some of his buddies and they, along with their parents, met us at the local laser tag joint for a few games of family fun.  It was a great time had by all!

6 comments

Jenn Hooper - March 26, 2010 - 5:19 pm

Oh you continue to inspire… I don’t know how you do it… but you truly have an incredible gift Ery…

Erika Wagner - March 23, 2010 - 1:31 pm

You all are amazing!

Christy Marks - March 20, 2010 - 7:45 pm

sam, you are doing so great. as I read the last couple of posts I do admit I got tears in my eyes. because you are SO STRONG! That is so awesome what you did to that blob of cancer! I almost think (looking over my shoulder) you might be a genius (shhhh) you need to keep that under your hat for the time being. :) anyway, I wanted you to know that AJ and I are saying tons of prayers for you and hopefully we’ll be able to get together when you’re feeling better.

Sending laughs and hugs!
The Marks

Gretchen - March 15, 2010 - 9:18 pm

I had to laugh out loud at the clip art remark…ha! So glad Sam has found ways to vent and express his fears. Our prayers for all of you continue.

Phyllis Crucitti - March 12, 2010 - 12:42 pm

Awesome! We all could use a chart like Sam’s Happy Talk Time Chart! We all have fears and need to talk to ourselves to calm them. I use yoga in a very similar way..to calm my mind and body! Sam is such an inspiration and Erica your homemade chart is great!

Laurel - March 11, 2010 - 12:21 pm

I love these ideas that Sam and his doctors have come up with! How empowering for Sam to get to be an active (even aggressive) part of his own treatment and healing. We can all be challenged to face our fears head on and even flush or burn them!! Sam’s positive thoughts and humor are inspiring. Love to all, Laurel

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